We provide comprehensive care for all patients with bleeding disorders.  This care includes annual visits and an assessment of care needs including physical therapy, occupational therapy, social work, nursing and dental needs.  Providing comprehensive care allows patients to prevent long terms complications related to their disease and live their healthiest life. 

 Procedural support: Our team will work with offices both in and outside of our network to create safe hemostasis action plans for procedures. This includes but is not limited to dental work, injections, orthopedics, and OB/GYN care. We meet quarterly with maternal fetal medicine to discuss high risk cases and to discuss in person delivery plans. Hemostasis action plans include pre procedural, during procedure, and post procedural care guidelines for your individual case.

Community support: Our hemophilia treatment center nurse is available to assist with education in the community, including individualized school/daycare teaches for children with bleeding disorders.

 Our team works closely with specialty pharmacies to ensure efficient delivery of factor products delivered to the home for self-infusion. We offer education and support on self-infusion and work with the patient/family to ensure the safety and comfort of administration in the home setting. We also have our own 340B factor specialty pharmacy that supports our program by offsetting the cost of our HTC services. 

• Home and school visits for teaching purposes on individual basis
• Family education provided for newly diagnosed pediatric patients
• Education provided to MD offices as needed
• Coordination of care with regional hemophilia camps
• 24 hour pediatric and adult assistance available via phone

• Hemophilia A

• Hemophilia B 

• Von Willebrand Disease

• Other coagulation factor deficiencies 

• Platelet disorders

• Fibrinolytic disorders (Pai-1 deficiency)

• Ehlers Danlos type IV 

• Personal or family history of bleeding disorders

The WHAT clinic focuses on the care of patients with bleeding and thrombosis disorders.  The clinic provides personalized care delivered by experts in the field with the goal of improving care, quality of life and the clinical experience for women. 

 Specific services include:

•  Evaluation of bleeding and clotting conditions such as von Willebrand’s Disease, carriers of hemophilia A and B and women with thrombophilia (clotting tendencies)
• Hematology treatment including management of acquired and inherited problems of hemostasis and thrombosis (bleeding  and clotting)
• Pregnancy consultation and supportive care for women with thrombosis or bleeding disorders who are pregnant or planning a pregnancy

• Consultation for menorrhagia evaluation

   

The Coagulation and Special Coagulation sections are one of the region's foremost resources for coagulation studies. State of the art tests performed enhance diagnostic capabilities for congenital and acquired bleeding disorders, hypercoagulable evaluations, platelet disorders, and autoimmune coagulation disorders. The services provided by our laboratory support the Thrombosis and Hemostasis Program and our Hemophilia Treatment Center.

• Routine coagulation including Protime, PTT, Fibrinogen, D-Dimer, and Mixing Studies
• Therapeutic monitoring for low molecular weight and unfractionated heparin
• Advanced coagulation testing including: coagulation factors, von Willebrand factor antigen and activity and thrombin time
• Bethesda assays (measure the amount of factor specific inhibitor)
• Advanced Hypercoagulability studies including: antithrombin III activity, functional protein C and protein S activity
• Platelet dysfunction testing (PFA, platelet aggregation and secretion, platelet mapping)
• Lupus anticoagulant cascade to detect antiphospholipid antibodies and interference
• Use the thrombelastograph (TEG) analyzer to assist in the assessment of patient clinical hemostasis conditions in the operating room by providing a live quantitative and qualitative indication of the coagulation state of a blood sample

Contacts

Coagulation Medical Director: Andrew Goodwin, MD
Manager: Cindy Nelson, MT (ASCP)
Supervisor: Lisa Reste, MT (ASCP)
Coagulation Technical Specialist: Kristin Lundy, CLS