Office of Health Promotion Research
Abstract 1990-1999Geller BM, Worden JK, Ashley JA, Mercurio TD. Practical, legal and ethical implications for protecting patients' and providers' privacy in a computerized registry. J of Registry Mgmt 1999 Feb;26(1):11-15.
The Vermont Breast Cancer Surveillance System uses a large computerized database to provide quality assurance feedback to contributing physicians and to conduct breast cancer research. Both uses of the registry data require specific legal protection from discovery. In addition, both patients and providers are considered research subjects, each with their own needs for confidentiality protection. This article describes how the Vermont Breast Cancer Surveillance System approached providing confidentiality protection. Existing laws and systems were reviewed to see if there was a need for additional protection. Finally, solutions were sought for areas in which existing laws or systems needed improvement.
Last modified September 16 2013 04:10 PM