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Office of Health Promotion Research

OHPR Abstract 106

Abstract 1990-1999

Geller BM, Worden JK, Ashley JA, Oppenheimer RG, Weaver DL. Multipurpose statewide breast cancer surveillance system: The Vermont experience. J Registry Mgmt 1996 Nov;23(4):168-74.

In 1993 the University of Vermont, Vermont Programs for Quality in Health Care and the Vermont Hospital Association collaborated to develop an infrastructure aimed at reducing the morbidity and mortality from breast cancer. The Vermont Mammography Registry was developed to: (1) help assure quality improvement of mammograms; (2) provide data for clinical and epidemiological studies and; (3) improve access to mammography through marketing and public education. This statewide mammography/pathology registry differs from traditional cancer registries because it is site specific, collects data on benign, as well as malignant cases, and records mammogram and breast ultrasound data. This paper reviews the development of the registry, the first three years of operation, including legal, confidentiality, and data use issues. In 1995, the Vermont Mammography Registry expanded to become the Vermont Breast Cancer Surveillance System with membership in the National Breast Cancer Surveillance Consortium.

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